Tag: health

  • Permission to Rest: A Mom’s Weekend Respite

    There are some people you love so deeply that watching them hurt becomes its own kind of ache.

    My older sister is one of those people.

    She is a loving, fiercely devoted mother. Her son, my nephew Brian, is on the autism spectrum, and caring for him has required an extraordinary level of patience, vigilance, advocacy, and love. She gives him all of that—and then some.

    But Brian isn’t her only child. She also has two other children who need their mother. She works part-time. She is divorced. And although her children’s father is technically still their father, he has been largely uninvolved in their lives.

    In every way that matters, my sister has been a single mother.

    And I have watched her carry the weight of it.

    For years, I watched my sister grow older before her time. I saw the exhaustion in her face, the tension in her shoulders, and the weariness that seemed to settle more deeply into her with every passing year. There was a terrible ache in my heart as I watched it happen.

    And, if I’m being completely honest, there was anger too.

    I found myself developing a mounting resentment toward my former brother-in-law. I struggled with the unfairness of it all. I couldn’t understand how someone could stand so far outside the daily struggles of his own children while my sister carried so much of the responsibility.

    I knew, however, that my resentment wasn’t going to help my sister.

    So I dealt with it the best way I knew how: I journaled. I prayed. I took my anger and frustration somewhere they could be examined rather than unleashed.

    But my worry about my sister was different.

    I couldn’t journal or pray away the sight of someone I loved slowly running herself into the ground.

    I desperately wanted to give her a break.

    At first, I offered her something substantial: a seven-day resort and spa vacation. I wanted her to disappear for a week. No responsibilities. No schedules. No cooking. No appointments. No worrying about anyone else’s needs.

    Just rest.

    She wouldn’t hear of it.

    The very thought of leaving Brian for that long filled her with guilt and fear. She worried about what might happen in her absence. She worried about her children. She worried about being a good mother.

    In other words, she worried about everything except herself.

    So I tried again.

    This time, I made the offer smaller.

    I would treat her to a relaxing weekend at a local luxury hotel, along with a day at a spa. I would stay home with Brian and his brother and sister. She wouldn’t be going far. She wouldn’t be gone long.

    She could sleep.

    She could eat a meal without having to think about someone else’s needs.

    And, most importantly, she could allow someone to work the knots out of those perpetually tense shoulders and that aching back.

    Still, she hesitated.

    Then something changed.

    After one of her biweekly therapy sessions, my sister decided to accept my gift.

    She was still worried about leaving Brian. But she finally acknowledged something that had become increasingly difficult to ignore:

    She couldn’t continue neglecting her own body and emotional well-being.

    So she went.

    I told her she could have one “check-up” call each day.

    That was it.

    And while she was gone, something rather wonderful happened.

    The children and I had a great time.

    There was no crisis. No catastrophe. No reason for her to have been consumed with worry.

    We had a wonderful, wonderfully ordinary time together.

    Meanwhile, my sister slowly began allowing the people I had arranged to care for her to actually do their jobs.

    That might sound like a small thing.

    It wasn’t.

    For someone who has spent years believing that everything depends upon her, surrendering responsibility—even temporarily—can be incredibly difficult.

    But she did it.

    And when she came home, I could see the difference before she said a word.

    She stepped out of the hired car with a relaxed air and a steadiness I hadn’t seen in her in years.

    Of course, she immediately became Mom again.

    After satisfying herself with a long, motherly reunion with her “babies,” she finally had a moment to tell me about her weekend.

    Her expression became serious.

    She told me that she hadn’t realized just how badly she had been doing until she was on the massage table.

    Her normally reticent professional masseuse had apparently made several sounds of dismay while working through the deep layers of knots in her muscles.

    My sister said something that stayed with me.

    She told me she had no idea that her body had been “keeping score.”

    But it had.

    Her body had been keeping score of the stress.

    The sleeplessness.

    The responsibility.

    The fear.

    The constant vigilance.

    The emotional strain.

    The years of putting everyone else’s needs ahead of her own.

    Her body had been recording everything she thought she could simply push through.

    And perhaps that’s one of the hardest lessons for caregivers to learn:

    Just because you can keep going doesn’t mean you should.

    I asked my sister if she would let me treat her to a weekend retreat every two months. I would have offered a monthly respite, but I knew she wouldn’t commit to that.

    After some time and contemplation, she committed to the bimonthly local retreat.

    She had noticed something important.

    Her little weekend away hadn’t just made her feel better.

    It had changed something at home.

    She was more rested. More emotionally available. More grounded.

    And that had a positive effect on her children.

    That realization gave me a tremendous sense of relief.

    I hadn’t needed her to become someone who suddenly put herself first.

    I just needed her to understand that taking care of herself wasn’t the opposite of taking care of her children.

    It was part of it.

    My sister has spent years giving her children everything she has.

    My hope now is that she will learn that she doesn’t have to give them the last drop of herself.

    She is a mother, but she is also a woman.

    She has a body that needs rest.

    A heart that needs tending.

    A mind that needs quiet.

    And a spirit that deserves care.

    I can’t change the circumstances that have made her life so difficult. I can’t make another parent become the parent he should have been. I can’t remove every challenge that comes with raising a child on the autism spectrum while raising two other children, working, managing a household, and carrying the emotional responsibilities that come with being the one who is always there.

    But I can remind her that she doesn’t have to carry everything alone.

    And when she forgets, I will remind her again.

    Because sometimes loving someone means helping them understand that caring for themselves isn’t selfish.

    Sometimes it’s necessary.

    Sometimes the person who needs saving isn’t a child.

    Sometimes it’s the mother who has spent years saving everyone else. 

  • When a Vacation Becomes More Work Than a Vacation: One Caregiver’s Journey to Accessible Travel

    A vacation is supposed to be something you look forward to—a chance to step away from everyday responsibilities, explore somewhere new, relax, and create memories with the person you love.

    But for my aunt, planning a vacation with her husband, who is blind, became an exhausting exercise in figuring out how to make a supposedly simple trip actually work.

    She had planned a seven-day Caribbean cruise departing from Miami. It was meant to be an exciting getaway for the two of them. Instead, long before they ever stepped aboard the ship, she found herself overwhelmed by questions, arrangements, and uncertainties she hadn’t anticipated.

    The Challenge of Just Getting To The Vacation

    Getting to the cruise was the first challenge.

    Because her husband is blind, my aunt knew she needed to make special arrangements for their flights to and from Miami. She had to think about how he would navigate the airport, how they would get from one place to another, and what assistance would be available to him along the way.

    None of these things seemed impossible individually. The problem was that there were so many details to consider—and so little straightforward information about how everything would work together.

    Planning a trip for two people should not feel like solving a complicated puzzle.

    Yet that is exactly how it felt.

    Every new question seemed to lead to another question.

    Would the airline provide the assistance her husband needed? Who would meet them when they arrived? How would they get through the airport? What would happen during connections? How would they get from the airport to the cruise terminal? Once aboard the ship, what accommodations would be available? And what would happen when it was time to return home?

    My aunt wasn’t simply planning a vacation.

    She was trying to anticipate every possible obstacle before it happened.

    The Information Gap

    One of the hardest parts wasn’t necessarily finding accommodations. It was knowing what questions to ask in the first place.

    When you’re unfamiliar with accessible travel, you may not know what services are available, which ones need to be requested in advance, or what a company means when it describes something as “accessible.”

    Accessibility can mean very different things to different people.

    For someone who is blind, an accessible hotel room isn’t simply a room with a particular physical feature. Accessibility can involve communication, navigation, transportation, orientation, assistance with unfamiliar surroundings, and having staff who understand how to provide appropriate support.

    My aunt found herself trying to learn all of this while simultaneously coordinating flights, transportation, the cruise, and everything else that comes with taking a weeklong vacation.

    The uncertainty was exhausting.

    She often felt overwhelmed, uninformed, and unsure whether she had made the right arrangements.

    The Mental Load of Traveling With a Disability

    What made the experience particularly difficult was the mental load.

    My aunt wasn’t just thinking about where they would sleep or what time their flight left. She was constantly thinking ahead.

    What if something didn’t go as planned?

    What if someone didn’t understand that her husband was blind?

    What if assistance wasn’t available when they needed it?

    What if she had overlooked something important?

    These concerns can turn the excitement of planning a vacation into anxiety.

    Instead of simply looking forward to the trip, she felt responsible for making sure everything went smoothly for both of them.

    And that responsibility followed her throughout the vacation.

    Even when they were finally on the cruise, she couldn’t completely put the planning mindset aside. She had spent so much time arranging and coordinating things that she had difficulty simply being a traveler and enjoying the experience with her husband. Who was an absolute sweetheart through the entire experience. But still…

    Coming Home More Exhausted Than When She Left

    Perhaps the clearest indication of how difficult the experience had been came after they returned home.

    My aunt was more exhausted than when she had left.

    A vacation that was supposed to provide rest and enjoyment had required so much preparation, coordination, problem-solving, and vigilance that she came home feeling drained.

    That’s when she began to think about what she would do differently next time.

    In hindsight, she wished she had asked for professional help.

    Not because she wasn’t capable of planning the trip herself, but because she shouldn’t have had to figure everything out on her own.

    Sometimes the Best Travel Investment Is Help

    Professional accessible-travel planning could have given my aunt something incredibly valuable: confidence.

    A knowledgeable travel professional could have helped her understand what accommodations to request, when to request them, and how the different parts of the trip needed to connect.

    Instead of calling multiple companies and trying to explain her husband’s needs over and over, she could have had someone who understood accessible travel helping coordinate the experience.

    Instead of wondering whether she had forgotten something, she could have had an experienced professional helping identify potential challenges before they became problems.

    And instead of spending so much energy managing logistics, she could have spent more time being a wife enjoying a vacation with her husband.

    Accessible Travel Shouldn’t Feel Like an Obstacle Course

    My aunt’s experience raises an important question:

    Why should planning a vacation for someone who is blind require so much additional work from the person traveling with them?

    Travel should be about experiencing new places, spending time together, and making memories—not spending months trying to determine whether basic accommodations will actually be available.

    People with disabilities deserve the same opportunity to travel with confidence and independence.

    Their families and companions deserve support, too.

    Accessibility isn’t simply about making a destination technically available. It’s about making the entire travel experience understandable, manageable, and welcoming.

    A Lesson Learned

    My aunt’s Caribbean cruise ultimately taught her something she wishes she had known before she started planning:

    You don’t have to do it all yourself.

    Asking for professional assistance isn’t a sign that you can’t handle the trip. Sometimes, it’s the smartest way to make sure everyone gets to enjoy it.

    With the right help, planning a vacation can become less about anticipating everything that could go wrong and more about looking forward to everything that could go right.

    My aunt still loves the idea of traveling with her husband. She simply wishes she had known sooner that she didn’t have to navigate the challenges of accessible travel alone.

    And perhaps that’s the most important lesson from her experience:

    A vacation should leave you with memories—not the feeling that you need another vacation to recover from planning the first one.

  • The Caregiver Needs Care, Too

    There are seasons in life when everything changes in an instant.

    For me, that season began when both of my parents became seriously ill at the same time.

    I had been moving along my own career path, making plans and building a life. Then suddenly, my parents needed me. Not occasionally. Not simply for a helping hand or a ride to an appointment. They needed significant, sustained care.

    So, I gave up my career path and became a caregiver.

    When Everything Happened at Once

    My mother was hospitalized in Savannah after a botched surgery for a herniated disk. Things became even more frightening when a resistant staph infection developed. The infection became life-threatening, and there were moments when we weren’t sure whether she would survive.

    While my mother was fighting for her life in one Savannah hospital, my father was struggling emotionally with what was happening to the woman he loved.

    The stress and distress became so overwhelming that he suffered a myocardial infarction—a heart attack.

    Suddenly, my father needed major medical attention of his own. He underwent bypass surgery at a different hospital in Savannah.

    I remember thinking, Thank God they are at least in the same city.

    Even so, having two parents seriously ill in two different hospitals was overwhelming.

    There were hospital rooms, doctors, nurses, medications, procedures, surgeries, updates, decisions, rehabilitation, and recovery. There were moments of hope followed by moments of fear. There were days when simply getting through the day felt like an accomplishment.

    The stress was astronomical—for my parents, for our family, and for me.

    It was a long and arduous road.

    But we made it through.

    Coming Home Didn’t Mean It Was Over

    Eventually, my parents were able to come home. They had regained enough strength and autonomy that they could manage some things for themselves.

    I should have been relieved.

    And I was.

    But I also knew there were bills to pay.

    So, I found a local teaching position.

    During the day, I worked.

    In the evenings and at night, I cared for my parents.

    I kept going.

    I told myself that this was what needed to be done. I loved my parents. I didn’t want to let them down. I didn’t want to abandon the people who had always been there for me.

    So I kept showing up.

    And showing up.

    And showing up.

    Until one November morning, my body finally told me what my mind had refused to acknowledge.

    The Wake-Up Call

    I was standing in my classroom when I almost passed out.

    My blood pressure was quite elevated, and I was exhausted.

    Completely exhausted.

    My principal knew what my family and I had been going through.  He looked at the situation and ordered me to take some days off.

    My first reaction wasn’t gratitude.

    It was embarrassment.

    I felt guilty.

    I didn’t want to let anyone down. I didn’t want my students to suffer because I wasn’t there. I didn’t want my family to think I was abandoning them.

    Most of all, I felt like a failure.

    I had spent so much time believing that being strong meant continuing to push forward that I didn’t recognize how badly I needed to stop.

    Fortunately, I had an aunt who was willing to tell me the truth.

    And she did not sugarcoat it.

    My Aunt’s Home Truths

    My aunt reminded me of four simple things:

    – I’m human, and I need rest.
    – There are other people in my family who can help.
    – I am worthy of care, too.
    – I am not useful if I’m sick or dead.

    That last statement stopped me in my tracks.

    It wasn’t poetic.

    It wasn’t gentle.

    But it was exactly what I needed to hear.

    My aunt was reminding me that I couldn’t continue sacrificing my own well-being and pretend that sacrifice had no consequences.

    I listened.

    And I took a long weekend away.

    St. Simon’s Island

    I went to St. Simon’s Island.

    And I did very little.

    That was the point.

    I didn’t solve problems.

    I didn’t manage anyone’s care.

    I didn’t rush from one responsibility to another.

    I simply rested.

    I enjoyed the quiet.

    I listened to the hypnotic sound of the soft Atlantic waves.

    For perhaps the first time in a very long time, I allowed myself to breathe.

    When I returned home on Wednesday afternoon, something had changed.

    I felt stronger.

    I felt more capable.

    I felt more peaceful.

    And, interestingly, my parents seemed different, too.

    My father was strangely more cooperative.

    My mother was less critical.

    Taking time away had not made me a less devoted daughter.

    It had made me a healthier one.

    What Caregiving Taught Me

    That experience taught me something I have carried with me ever since:

    Self-care is not selfish.

    Sometimes caregivers believe that taking time for themselves means they are neglecting the people they love.

    We may think:

    Who will take care of everything if I stop?

    What if someone needs me?

    What will people think?

    Am I being selfish?

    Shouldn’t I be stronger than this?

    But there is a difference between being devoted and being depleted.

    There is a difference between helping someone and destroying yourself in the process.

    There is a difference between love and believing that you must suffer endlessly to prove that you love someone.

    Caregivers need care, too.

    To the Person Who Keeps Showing Up

    If you are caring for a parent, spouse, child, sibling, friend, or another loved one, I want you to know something:

    You matter, too.

    Your exhaustion matters.

    Your health matters.

    Your peace matters.

    Your dreams matter.

    Your life matters.

    You don’t have to wait until your body forces you to stop.

    You don’t have to earn rest.

    You don’t have to apologize for needing help.

    And you don’t have to carry everything alone.

    Look around you. There may be family members, friends, neighbors, community organizations, faith communities, colleagues, or professionals who can share the load.

    Let them.

    Even if they don’t do things exactly the way you would.

    Even if asking for help feels uncomfortable.

    Even if you have spent years being the person everyone else depends upon.

    You are worthy of care, too.

    Give Yourself Permission to Rest

    My weekend at St. Simon’s Island didn’t fix everything.

    My parents were still recovering.

    There were still bills.

    There were still responsibilities.

    There were still difficult days ahead.

    But something inside me had changed.

    I had learned that rest could restore me rather than diminish me.

    I had learned that stepping away for a little while didn’t mean I loved my parents any less.

    And I had learned that I could be a better caregiver when I wasn’t running myself into the ground.

    I have practiced self-care ever since.

    Not perfectly.

    But intentionally. I actually plan to take breaks on purpose now. It is a priority.

    So, if you’re a caregiver who has been putting yourself last, I hope you’ll remember my aunt’s wisdom.

    You are human. You need rest.

    There are other people who can help.

    You are worthy of care, too.

    And please—don’t wait until your body has to shout what your heart has been whispering:

    Take breaks.

    Rest.

    Breathe.

    Walk.

    Sit by the water.

    Take the weekend or more.

    Ask for help.

    Do whatever restores a little of the person you were before caregiving consumed so much of your life.

    Your loved one needs you.

    But you need you, too.

    I’m sending you light, love, and much support.

    Melissa